EDIT: This post was written a few days ago and I’ve debated actually posting it because it sounds like I’m whining. But the point I really wanted to make is that parents need to trust their instincts. Pediatricians don’t know everything. No one does.
I really thought our journey with doctors and hospitals was over. I knew that Little One was slower to walk and talk, and recently I enlisted the services of Early Intervention in our area. We have Speech Therapy, Occupational Therapy, and Eating/Feeding/Swallowing services on deck. However, the Failure to Thrive diagnosis has been eating at me. LO’s growth chart is starting to show a disturbing plateau as far as weight goes. He was the 5th percentile for the first few months and at 9 months old, fell off the chart. And every appointment he is farther (or is it further?) away from the normal 50th percentile.
AGAIN, my ped said “don’t worry, let’s see what happens”. AGAIN, I trusted my mommy instincts and made an appointment with a pediatric GI doctor. Our appointment was two weeks ago. And AGAIN, I am thrilled I went with my gut. (And I broke up with my pediatrician…but that’s another story for another post)
Dr. R looked at LO and his chart and point-blank, told me that if he keeps on this course, he would be on a feeding tube within a year. Scary, no-bullshit, in-your-face words. Words I needed to hear. I had been working with a nutritionist for a few months now and she had me get high-calorie and high-fat foods into LO. Whole foods. Grains, legumes, cheese, cream, protein. Adding cream to his milk. Adding oil to his smoothies. No more on-the-go pouches, no Pediasure, no crap food. Until yesterday, when I saw Dr. R.
I was told to get the calories into LO any way I could. Pediasure 3x a day or Carnation Instant Breakfast. Ice cream. Milkshakes. Full-fat anything, and screw the “healthiness” aspect. Just get the CALORIES IN HIS BODY. Now he’s not a picky eater but he’s certainly not a voracious eater either. So to have carte blanche to feed him ANYTHING was a God-send. We put him on an appetite stimulant 2x a day, to weeks on and two weeks off.
OT saw him recently and recommended we see an ENT for his tongue. It’s too high, doesn’t have a dip in the middle like it should. My head is spinning.
More tests…to rule out cystic fibrosis…celiac disease…
Did I mention my head was spinning?
ANOTHER EDIT: Cystic Fibrosis test was negative!